Search results for "questionnaire study"
showing 10 items of 19 documents
The Older Finnish Twin Cohort : 45 Years of Follow-up
2019
AbstractThe older Finnish Twin Cohort (FTC) was established in 1974. The baseline survey was in 1975, with two follow-up health surveys in 1981 and 1990. The fourth wave of assessments was done in three parts, with a questionnaire study of twins born during 1945–1957 in 2011–2012, while older twins were interviewed and screened for dementia in two time periods, between 1999 and 2007 for twins born before 1938 and between 2013 and 2017 for twins born in 1938–1944. The content of these wave 4 assessments is described and some initial results are described. In addition, we have invited twin-pairs, based on response to the cohortwide surveys, to participate in detailed in-person studies; these …
Barber-Say Syndrome and Ablepharon-Macrostomia Syndrome: A Patient's View
2017
Barber-Say syndrome (BSS) and ablepharon-macrostomia syndrome (AMS) are infrequently reported congenital malformation disorders caused by mutations in the <i>TWIST2</i> gene. Both are characterized by abnormalities in ectoderm-derived structures and cause a very unusual morphology of mainly the face in individuals with otherwise normal cognition and normal physical functioning. We studied the impact that the presence of BSS and AMS has on psychosocial functioning of affected individuals and their families, using their point of view to start with. We tabulated frequently asked questions from affected individuals and families, and a parent of an affected child and an affected adul…
Sleep disturbances in Angelman syndrome: a questionnaire study.
2003
Only few studies are available on sleep disorders in Angelman syndrome (AS), a neurodevelopmental disorder with several behavior disturbances. The aim of this study was to determine the prevalence of sleep disorders in a relatively large group of AS subjects, compared to that of age-matched controls. Forty-nine consecutive parents of patients with AS (26 males and 23 females aged 2.3-26.2 years) were interviewed and filled out a comprehensive sleep questionnaire. Based on their genetic etiology, four groups were defined: deletion of chromosome 15q11-13 (25 subjects); methylation imprinting mutation (six subjects), UBE3A mutations (seven subjects) and paternal uniparental disomy (five subjec…
Sleep disturbances in Algelman syndrome: a questionnaire study
2004
Only few studies are available on sleep disorders in Angelman syndrome (AS), a neurodevelopmental disorder with several behavior disturbances. The aim of this study was to determine the prevalence of sleep disorders in a relatively large group of AS subjects, compared to that of age-matched controls. Fourty-nine consecutive parents of patients with AS (26 males and 23 females aged 2.3–26.2 years) were interviewed and filled out a comprehensive sleep questionnaire. Based on their genetic etiology, four groups were defined: deletion of chromosome 15q11–13 (25 subjects); methylation imprinting mutation (six subjects), UBE3A mutations (seven subjects) and paternal uniparental disomy (five subje…
Disadvantaged by Disability: Examining the Accessibility of Cyber Security
2021
Today, we are living in a digitally dependent world. Through the use of digital technologies, life is meant to be easier and streamlined. This includes giving access to services that previously were unavailable to many due to disability. Although technology has evolved immensely over the past few decades, reducing the digital divide, authentication methods have changed very little. Authentication is the forefront of securing users’ information, services and technology, yet for many it still poses issues in terms of usability and security, due to specific characteristics of different disabilities. In this paper, drawing upon a literature review, a review of recognized disabilities, and the r…
Development of need for recovery from work over one year: A person-centered approach
2011
This longitudinal questionnaire study conducted among 274 Finnish employees (57% women, average age 45.9 years) in a variety of jobs aimed at identifying groups of employees who share similar mean levels and changes in need for recovery and finding out whether factors regarded as antecedents of need for recovery distinguish between the different groups of need for recovery across one year. Using mixture modeling eight groups of need for recovery were identified. The individuals identified as closely resembling each other with respect to need for recovery and its change across one year were considered to belong to the same need for recovery group. Five of these groups indicated stable (low, …
Irrationale Einstellungen und soziale Belastung bei Patienten in ambulanter Verhaltenstherapie: Verlauf, prognostische und mediierende Einflüsse auf …
2002
Fragestellung: Bisherige Studien legen nahe, dass sozialer Stress und kognitive Dysfunktion zur Entwicklung psychischer Storungen beitragen konnen. Kaum untersucht wurde, inwieweit beide Faktoren die Heilungschance bei psychotherapeutischer Behandlung beeinflussen und mit dem Behandlungserfolg kovariieren. Ziel der Studie war, die 1. Veranderung irrationaler Einstellungen und der Wahrnehmung sozialer Belastung im Verlauf ambulanter Verhaltenstherapie sowie 2. ihre Rolle als Pradiktoren und 3. als Mediatoren des Behandlungsergebnisses bei Patienten mit heterogenen Diagnosen zu untersuchen. Methoden: Eine diagnostisch unausgelesene Stichprobe von 62 Patienten wurde zu Beginn und zum Abschluss…
Course of social support and associations with distress after partial laryngectomy
2021
PURPOSE Social support has been shown to be positively associated with quality of life and adjustment after a cancer diagnosis. The present study investigates the course of social support up to one year after partial laryngectomy and its association with distress. DESIGN Longitudinal questionnaire study. SAMPLE A total of 428 patients after partial laryngectomy (mean age: 64, SD = 11, 91% male). METHODS Patients completed questionnaires before treatment (t1), one week after a partial laryngectomy (t2), 3 months (t3), and one year (t4) thereafter. Social support was evaluated at t2, t3, and t4 using a brief version of the Social Support Questionnaire. Distress was measured at t2, t3, and t4 …
Teething disturbances : prevalence of objective manifestations in children under age 4 months to 36 months
2011
Objective: The aim of this study was to present data as responded by parents on teething manifestation during eruption of primary teeth and the occurrence of objective manifestations in children ages 4 months to 36 months. Settings and Design: Hospital based face-to-face questionnaire study. Study Design: One thousand and one hundred children ages four to 36 months who had at least one erupting tooth were included in the study. Parents were asked to complete a short questionnaire and children were then checked by one of the authors. Statistical analysis used: Chi-square analysis was performed to analyze information obtained. Level of significance was set at P<.05. Results: There were 660 gi…
Acceptance of Tinnitus: Validation of the Tinnitus Acceptance Questionnaire
2013
The concept of acceptance has recently received growing attention within tinnitus research due to the fact that tinnitus acceptance is one of the major targets of psychotherapeutic treatments. Accordingly, acceptance-based treatments will most likely be increasingly offered to tinnitus patients and assessments of acceptance-related behaviours will thus be needed. The current study investigated the factorial structure of the Tinnitus Acceptance Questionnaire (TAQ) and the role of tinnitus acceptance as mediating link between sound perception (i.e. subjective loudness of tinnitus) and tinnitus distress. In total, 424 patients with chronic tinnitus completed the TAQ and validated measures of t…